...oh, really? shit....headed home

FDG-PET: Note the large tumor lesion with an SUV +/- 60. FDG-PET: Note cross hairs on the "potential" primary tumor in the pancreas. I am out of the hospital in Germany and the good news is that I will not have to return for 12 months… the bad news is that I need to have surgery soon. It turns out that the large potentially 90% benign lesion IS NOT BENIGN after all… This wouldn’t be so bad except that now, it appears as though I don’t have a pure NET, but some type of rare unidentified hybrid (both in the liver and primary). This was revealed by the FDG-PET scan. These suspect tumors have massive FDG uptake. (-a scan that is available in the US an none of my doctors thought to order…???) This “mixed-tumor” didn’t happen overnight, it has been like this from day one, but we only now have the information to deal with it. My disease is no worse than when I walked into the hospital, but the information we have changes the plan, and potentially the prognosis, greatly. Luckily, th...