www.polaroidepitaphs.com | temporary site


I've just gotten through the first round of scan edits on the Polaroid series... So, I posted them to a temporary site while I'm building their "final resting place". Of course, new additions will also be added to the site as they are made. But until then, here are the first 24 pieces from the series.

Tomorrow I'll be going to Northwestern. Hopefully we can start treatment soon? I put together a binder as big as my head including all of my medical records to date.... it keeps growing. Hopefully, my tumors grow slower than this binder, because it's becoming a whopper!!

After tomorrow, I should have more to say. This last week I was trying to concentrate on work, and less about disease.

This link should be working by Wednesday morning: http://polaroidepitaphs.com/

Comments

Post a Comment

Popular posts from this blog

Tickets to Germany: Bad Berka

Image
A blurred landscape photos for no good reason... We have our tickets for Germany. -Flying into Frankfurt arriving the morning of February 6th. On the 7th, we take the train to Bad Berka. Scan on the 8th. If the scan looks ok, we will proceed with surgery in Omaha with Dr. Botha. But before heading back to the US, we'll take the train to Berlin, and fly out from there on the 13th. If the scan is not so great, i.e., too many tumors in the liver to operate of extensive disease, we will see if I can stay for PRRT treatment. I'm not sure if this is an option at this time with respect to scheduling in the hospital, etc.... I still need to work out some logistics... that is, how does my surgeon in Nebraska review the imaging from the scan? When will a report be completed? That's all for now...
Read more

...a long winded story not written all that well.

Image
A cornfield somewhere in Wisconsin: Taken with a Horizon 35mm panormic: Taken just after a spell of severe stomach pains. October.2008 So, here it goes, from the beginning: I've had recurring stomach pains for at least 4 years. For those who know me well, I’m a relatively “high-strung” individual… Ok, maybe I’m borderline OCD? Initially, doctors thought these stomach pains might be related to anxiety? But sometime late in 2007, my pain slowly started to get worse. Well, I thought it must be an ulcer or something? At times, I’d have these attacks that would last for days, stabbing. When the pain started to become more frequent in November of 2008, Andrea forced me to see a doctor. The doctors initially thought it might be an ulcer, or, an issue with my gallbladder. I was sent for an ultrasound in early December 2008… and this is when it all began. During the ultrasound they noted that I might indeed have gallstones, for which an operation would be required. In addition, they n
Read more

...oh, really? shit....headed home

Image
FDG-PET: Note the large tumor lesion with an SUV +/- 60. FDG-PET: Note cross hairs on the "potential" primary tumor in the pancreas. I am out of the hospital in Germany and the good news is that I will not have to return for 12 months… the bad news is that I need to have surgery soon. It turns out that the large potentially 90% benign lesion IS NOT BENIGN after all… This wouldn’t be so bad except that now, it appears as though I don’t have a pure NET, but some type of rare unidentified hybrid (both in the liver and primary). This was revealed by the FDG-PET scan. These suspect tumors have massive FDG uptake. (-a scan that is available in the US an none of my doctors thought to order…???) This “mixed-tumor” didn’t happen overnight, it has been like this from day one, but we only now have the information to deal with it. My disease is no worse than when I walked into the hospital, but the information we have changes the plan, and potentially the prognosis, greatly. Luckily, th
Read more